In a new court hearing, Charlie Gard’s parents say they want to take their son home to die. (July 25)
LONDON â The parents of terminally ill baby Charlie Gard are dropping their request for the 11-month old infant to die at home in favor of their son being cared for in hospice.Â
Connie Yates returned to Londonâs High Court Wednesday to request a medical team that could keep her son alive for a week under hospice care rather than a few hours, according to the Associated Press.Â
A British judge was initially expected to decide Wednesday whether Charle Gard could go home to die but the request made by hisÂ parents indicates that theyÂ have backed away from their earlier wish to take Charlie home for “a few days of tranquility” before his ventilator is disconnected.Â
Great Ormond Street Hospital said it was not practical to provide life-support treatment for days at the coupleâs home.
Chris Gard and Connie Yates on Monday ended a months-long legal battle to take him to the United States for experimental treatment.
Charlie suffers from mitochondrial depletion syndrome, a rare genetic disease. He is brain damaged, cannot breathe unassisted and is deaf and blind.
His parents accepted Monday that his condition has deteriorated to the point where the experimental nucleoside therapy developed byÂ Michio Hirano, a professor of neurology at Columbia University Medical Center in New York,Â would not work.
Doctors at Great Ormond Street Hospital in the British capital, where Charlie has been cared for since he was admitted in October, say he should remain at the hospitalÂ or be taken to a hospice due to the difficulties of providing him with the appropriate care at home.
The hospital has not given an indication when it will turn off his life-support machines.