In a new court hearing, Charlie Gard’s parents say they want to take their son home to die. (July 25)
LONDON â A British judge is expected to decide Wednesday whether terminally ill baby Charlie Gard can go home to die.
Chris Gard and Connie YatesÂ Â â the 11-month old infantâs parents â on Monday ended a months-long legal battle to take him to the United States for experimental treatment.
Charlie suffers from mitochondrial depletion syndrome, a rare genetic disease. He is brain damaged, cannot breathe unassisted and is deaf and blind.
His parents accepted Monday that his condition has deteriorated to the point where the experimental nucleoside therapy developed byÂ Michio Hirano, a professor of neurology at Columbia University Medical Center in New York,Â would not work.
His parents want the High Court judgeÂ to grant them their “last wish,” for their son to die at home in west London.
Doctors at Great Ormond Street Hospital in the British capital, where Charlie has been cared for since he was admitted in October, say he should remain at the hospitalÂ or be taken to a hospice due to the difficulties of providing him with the appropriate care at home.
The hospital has not given an indication when it will turn off his life-support machines.
The parents of Charlie Gard, whose battle to get their critically ill baby experimental treatment stirred international sympathy and controversy, dropped their legal effort Monday. (July 24)
“We are about to do the hardest thing that we will ever have to do, which is to let our beautiful little Charlie go,” the infant’s father, Chris Gard, said outside the court in London on Monday.
He said he did not expect his sonÂ to live beyond his first birthday on Aug. 4.
In a statement Tuesday, Dr. Hirano said:…